Sunday, August 25, 2013

THE NUMBNESS & PAIN IN MY HANDS HAVE IMPROVED AFTER ONLY 8 DAYS OF MY BEING ON TECFIDERA

Yvonne Decellis, Columnist, MSnewsChannel.com
Read all 8 of my articles: click my photo in left Column

I just wanted to give you another Tecfidera update (sorry if I am writing in too fast and too frequently with these updates. I just want to be sure to keep you posted as to the changes as I notice them and/or have them pointed out to me.)

I used to have major issues and/or problems with numbness  and pain in my hands as a residual side effect from one of the worst exacerbations I have ever had (in 1998). During this attack, my left hand and arm went almost completely numb (and I am left handed). I eventually lost a lot of feeling in both hands and after getting over the attack (with the help of seven 6-hour Immunoglobulin drips) I lost a significant amount of feeling in both hands, particularly in the left. All I have (or HAD) been feeling in my hands is a combination of numbness and pain. Tecfidera makes me almost as happy as this:

Thursday, August 15, 2013

My Column today is a chapter from my upcoming book: "IT'S NOT AS BAD AS IT SOUNDS: My life with MS & Fibro"

 
Yvonne Decellis, Columnist, MSnewsChannel.com

My exacerbations & experiences

What is it like to have Multiple Sclerosis and Fibromyalgia (in other words, how will it effect a person physically)?

When I think of topics to add to this writing, I try to remember what things I wanted information on when I first got my MS diagnosis. Even though every patient is different, and even though medications affect different patients in different ways, I thought that reading about what I go through may be helpful.

Saturday, August 10, 2013

HERE'S MY ADVICE TO ALL FRIENDS & FAMILY OF PEOPLE WHO HAVE INVISIBLE ILLNESSES LIKE MY MS!

Yvonne Decelis, Columnist, MSnewsChannel.com
I just want to state as a side note to all friends, family members and loved ones of people who have these “invisible” illnesses: whether you can see something is wrong with us or not is not what matters. What is relevant is that you are someone we should be able to depend on and having you call us a liar, or lazy, or any of the other horrible things that you may want to label us is incredibly unfair and hurtful.

How would you feel if someone did something like that to you? Is it
that hard for you to attempt to empathize with us? It should not be! Just because you cannot see what is happening does not mean it is not! If you are married to someone with an invisible illness please do not forget the vow you made to love your partner “in sickness and in health.” You made a commitment and you should stand by it.
There are support groups for caregivers to people with these medical conditions. I am not trying to heap a bunch of blame on you but please understand that I have heard horror stories about parents, siblings, and/or partners who were abusive and/or unwilling to try to learn what they were doing (or not doing) wrong. I know you did not ask to be “saddled” with someone with a disability but we did not ask to be sick either.