Saturday, July 27, 2013

This is a section from a book (soon to be published) I have written called "It's Not as Bad as it Sounds (my life with MS and Fibro)"

(Yvonne Decelis, Columnist, MS News Channel)
I hope you enjoy this section (and I will definitely put an update in my column when the book comes out.) HERE'S CHAPTER ONE:

The things I’m grateful forNow I want to take some time to discuss some of the “perks” that I have discovered since being diagnosed (first with Multiple Sclerosis and then with Fibromyalgia.) I know that may be a somewhat irritating sentence to read, but good things have come out of this and I would be remiss if I didn’t mention any of them.

I want to start by writing about an online support group for people who have MS that I have found to be incredibly helpful. It is called “Stan’s Angels”. The URL for the group is http://www.stansangels.com/.   The person who started it is Stan Swartz and I was fortunate enough to join when he was putting the support group together so he and I have become good friends. If I had not discovered his web page, I honestly do not think I would have come out of the diagnosis with the healthy attitude and/or outlook I have now.

Wednesday, July 17, 2013

Here's what is it like to have Multiple Sclerosis & Fibromyalgia and how it effects me physically

(Yvonne Decellis, Columnist, MS News Channel)
This is from my upcoming book, It Isn't as Bad as it Sounds (my life with MS & Fibro) My exacerbations (MS attacks/flare-ups, etc.)

What is it like to have Multiple Sclerosis and Fibromyalgia (in other words, how will it effect me physically?)


When I think of topics to add to this writing, I try to remember what things I wanted information on when I first got my MS diagnosis. Even though every patient is different, and even though medications affect different patients in different ways, I thought that reading about what I go through may be helpful. I

Thursday, July 11, 2013

My secret to pain free Avonex shots plus my secret to coping with Avonex side effects


I have been on Avonex since 1998. I have found that the way (for me) to make the shots as "pain free" as I can is to use something like Prilocaine/Lidocaine cream (or Emla) to numb the top layer of skin out.

Here's how I cope with the side effects of Avonex:
I really hope this helps you (I can not guarantee it will since different things work differently for different people)...

I spoke to a nurse about early March of 2010 and when I complained of how lousy the Avonex made me feel (I've been using Avonex since 1996 and it always gave me flu like symptoms for 2 to 3 days) she recommended eating fresh (unprocessed/uncanned/unheated) pineapple... before (about an hour to ninety minutes BEFORE) I inject because it has an enzyme in it (Bromelain) that helps lessen the side effects significantly, particularly if I nap after injecting. FYI: It is a natural anti- inflammatory. She also told me it had to be fresh (but I did have one MSer tell me she used canned and felt it still helped. Then again another told me the exact opposite). I find that the more pineapple I eat, the more it helps.

My Neuro recently told me she has been telling her patients about this and that she's been getting good feedback back (for ALL Interferons, NOT just for Avonex).

NOTE: she also emphasized drinking LOTS of water the day of and after the shot

UPDATE: sometimes the pineapple works fine by itself, other times it isn't as effective so I have started taking Natural Papaya & Pineapple Enzyme chewable tablets that I get at Trader Joe's ($2.49). Also - I have started making smoothies instead of eating the pineapple all by itself. The smoothies work REALLY well (I'm glad too - getting kind of tired of Pineapple). ;o)

p.s. according to my Neuro this is something that should help with all Interferons